CDWR/CTMS User Survey - Final Header Image

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Section 1: Participant Information

Section 1 continued: Participant Information

7. Are you affiliated with the USC Norris Comprehensive Cancer Center?

Section 1 continued: Participant Information

8. What is your role and primary activity(ies)?

Faculty type:
Research type: (check all that apply)
Translational research type:
Staff type:
Clinical research support type:

Section 2: Clinical Data Warehouse for Research (CDWR)

There is significant interest in the creation of a clinical data warehouse for use by researchers across the USC enterprise. Containing patient data from USC hospitals, Children’s Hospital Los Angeles (CHLA), and ultimately Los Angeles County public health system (DHS), the warehouse would support the research enterprise by enabling large-scale population analysis and aggregate data output, as well as cohort identification and other efforts.

9. For what purpose(s) would you use a clinical data warehouse?

 

 Please rate each in terms of its importance to your research.  

 

0 = Would not use it for this purpose; 1 =  Minimally important; 2 = Important; 3 = Critically important/essential

Identification of potential participants in on-going or planned clinical trial
Health outcomes research
Historical data extraction for retrospective studies
Health access disparities research
Precision/personalized medicine
Health effectiveness research
Health economics/cost effectiveness research
Other (if not 0, specify below)
Quality healthcare research

Section 2 continued: CDWR

10. Listed below are types of data that could be included in a CDWR.

 

Please rate each in terms of its importance to your research.  

9. Listed below are TYPES OF DATA that could be included in a CDWR.
  Would not use Minimally important Important Critically important
Demographics
Diagnoses (ICD 9/10)
Procedures (CPT)
Medications
Laboratory test results
Radiology reports
Stage (for cancer diagnoses)
Pathology reports
Outcomes
Financial/cost data
Insurance coverage
Bio-repository data
Genetic/genomic data
Elements of physical exam - vital signs
Elements of physical exam - other than vital signs
Review of Systems (i.e., checklist covering organ systems)
Allergies
Smoking status
Drug/Alcohol use
Family history
Images
Physician notes
Other text in medical records
Other (specify below)

Section 2 continued: CDWR

11. In addition to hospital electronic medical records, pharmacy records, lab data, and financial systems, what OTHER SOURCES OF DATA would you like to see included in a CDWR? (check all that apply)

12. Please rate the importance to your research of having access to clinical data from the following locations.

  

0 = Would not use; 1 =  Minimally important; 2 = Important; 3 = Critically important/essential

Keck Medical Center of USC
Children's Hospital of Los Angeles
LA County Hospital (LAC+USC)
LA County public health system (DHS)

13. Please rate the importance to your research of having a structured biorepository.

 

0 = Would not use; 1 =  Minimally important; 2 = Important; 3 = Critically important/essential

Section 3: Clinical Trials Management System (CTMS)

15. Please rate each of the capabilities of a CTMS in terms of its importance to your research.

  

0 = Would not use; 1 =  Minimally important; 2 = Important; 3 = Critically important/essential

Study Management (protocol tracking; enrollment tracking; study calendar)
Financial Management (study budgeting; Medicare coverage analysis; invoicing)
Patient Management (patient enrollment, identification, and randomization; scheduling; eligibility tracking; adverse event tracking)
Report and Data Management (electronic case reports; data reporting and export tools)
Biorepository Management (specimen and result tracking; inventory management)
Other (if not 0, please specify)
Importing current clinical study data from my existing database(s)

Section 4: Participation in planning process

17. We will soon begin selecting individuals to guide the development of the CDWR. We want broad representation of perspectives and research areas (faculty and staff).

 

Would you be interested in participating in: (check all that apply)

18. We will soon begin selecting individuals to guide the development of the CTMS. We want broad representation of perspectives and research areas (faculty and staff).

 

Would you be interested in: (check all that apply)

Section 5: Existing and potential clinical and translational research infrastructure

The Southern California Clinical and Translational Science Institute (SC CTSI) is focused on serving researchers and would like to better understand your current needs.

19. Please rate the following currently available resources/services, in terms of importance to your research.

 

0 = Would not use; 1 =  Minimally important; 2 = Important; 3 = Critically important/essential

PILOT FUNDING - to support research, career development, innovative technologies and methodologies, progression of discoveries and multidisciplinary team formation
CLINICAL RESEARCH SPACE AND SERVICES - two clinical sites; outpatient and inpatient clinical research space; access to trained clinical research staff; sample procurement; specimen processing and handling laboratory; neurologic and bionutrition evaluations; and more

 

CONSULTATION SERVICES - Research advice from faculty, senior staff and external consultants:

Study design
Regulatory knowledge and support
Research ethics
Conducting and managing human studies
Data management
Bioinformatics
Biostatistics
Statistical analysis
Scientific writing
Translation of preclinical discoveries
Community-engaged research

20. Please rate the following under consideration resources/services.

 

0 = Would not use; 1 =  Minimally important; 2 = Important; 3 = Critically important/essential

PARTICIPANT RECRUITMENT SERVICE - Expertise, tools and resources to recruit participants for studies
CLINICAL RESEARCH COORDINATOR CORE - Trained coordinators available on an ad hoc recharge basis

Section 5 continued: Clinical Research Challenges

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